It’s Not Just What You See On The Outside

Emily Cover Photo

I don’t look sick, I look like a regular 20-year-old girl. No one would ever know that I am in a constant battle with my own body if I didn’t say it out loud. Since halfway through 2013, I have struggled every single day. Asking why me? Why me? Why did my own body attack itself?

I was diagnosed with Addison’s disease in September 2013, an autoimmune disease that I will have forever. “You don’t look sick though”, well actually this has a massive impact on my life and sometimes I cannot get out of bed.

Emily in hospital

Then December 2013, haemolytic anaemia, thankfully this one cleared up and isn’t a forever thing. January 2016, SLE lupus, on the outside perfectly normal except for a couple swollen fingers.

No one understood the pain that I was going through. Typing this and thinking about the pain that my joints and body went through in 2016 makes me want to cry. I can walk, drive, run and for that, I am so grateful but that doesn’t mean I’m not struggling whilst doing it. No matter how normal someone may look, you should never judge a book by its cover. You have no idea what’s going on inside their body.

These medical conditions are a burden on my life, but every day I’m slowly learning how to read my body. Without them, I wouldn’t be who I am, and I wouldn’t have learnt just how strong I am. I’ve just come to the realisation that maybe these conditions are my calling. I need to stop focusing on the negative, use them to my advantage. Help other people struggling, connect with others, and spread awareness.

Emily taking a photo

There is nothing I want more than for more and more people to know about these not so common diseases. I am open to helping absolutely anyone with any problems, big or small. We need to be there for one another. I’ve just started up an Instagram page just to give people some insight on what I and others go through, as no one really sees the behind the scenes.

Emily and Taylor

If you enjoyed reading this, take a look at Emily’s blog.

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